In two week’s time Zak (my 8 year old) and I are planning a 4 day unsupported charity bike ride from our house to his Granny’s house to raise some money for DebRA, a charity that supports people with EB. Epidermolysis Bullosa is a genetic condition where the skin breaks at the slightest touch, causing painful, open blisters and wounds. Younger sufferers are often referred to as “Butterfly Children” because of this fragility. One of the Zak’s schoolmates, Gabriel Duran-Escamez, suffered from this incredibly painful and debilitating condition.
Very sadly, Gabriel died just before the Easter holidays, aged only 8. He was an amazing kid, who had a really profound impact on the whole school. And he was a good friend. Zak would like to raise some money for the charity that supported his friend. So we’ve set up a page on JustGiving and would really appreciate it if you could take a look, and consider making a donation on this site.
I know he will be supported by the best cake maker in the business so therefore I do not have any worries that he wouldn’t make it.
Go Zak !
EDIT : And they are in the news, York Press – Eight year old boy to cycle to Barrow in Furness in aid of DebRA charity.